In May, when I went to the U of C Student Care Center for my yearly appt. (which was about 6 months late), the physician’s assistant was shocked that I asked for a lipids screening, a ths (thyroid level) test, and a urinalysis. I was shocked because she told me I had short little legs. About a week and a half ago, as I mentioned during my moving tales story, I received a phone call from this PA telling me that my thryoid levels were wacky. During that phone call, she insisted that I get this taken care of before my trip to Israel (I leave on Saturday).
I asked if it could wait until August, and was told no. I spent Friday finding a doctor within my PPO network who would be willing to see me, even if that dr. wasn’t my primary care doctor. Thankfully, the receptionist and the nurses were lovely and tracked someone down.
Last Wednesday, I went to the doctor. She said that I had hyperthyroidism. I could have this condition from a couple different other conditions, including cancer. I had a blood test, an EKG, and was immediately put on Beta blockers. My heart rate has been really fast for several years, but no physician has seemed worried. (a year and a half ago, my thyroid levels were normal). I was very nervous about having possible tumors in my thryoid, and was dreading the scan. However, on Tuesday, when I had the scan (after swallowing a radioactive iodine gel-cap!) my thryoid looked perfect–as in no tumors. Whew. However when they did the test to see how much iodine was in my body, it was over the “normal” amount, so I had to go back and get another “uptake” today.
The doctor’s office called today and confirmed: I have Grave’s Disease. I will be taking medicine for the rest of my life. When I get back from Israel, I will probably take a treatment of radioactive iodine, which will deactivate my thyroid. Then, I’ll be on synthetic thyroid treatment. This is a hereditary disease. My maternal relatives have thyroid problems and one has the disease as well. People, like me, with food and pollen allergies have a tendency to get the disease. AND the sulfa antibiotics I was on this winter probably hastened its onset.
As my friends and family know, this has been an incredibly rough year. I was sick for most of it. And I’ve never felt 100%. Now, I know why. I may have acted unlike myself–because Grave’s Disease causes anxiety, depression, and distractibility. All of which I’ve had more severely than ever before. And of course, those of you that have been close to me know that I’ve been tired all of the time. My schoolwork has also suffered–I thought I was just no longer smart! But, this disease causes brain disorganization, memory problems, etc. People can even be falsely mis-diagnosed with dislexia with this disease! So, if I’ve been acting like a freak, I apologize.
I’m really looking forward to remembering what it feels like to feel “normal.” I look forward to having energy and focus again. Although this whole experience has been frightening and annoying, I’m glad that it was caught now, instead of through a heart issue or other severe consequences. So, just a reminder, especially to women: when you get your physical get a full bloodwork too!